Who is the Sickle in Me Foundation?
What is SIMF doing about SCD?
SIMF Future Goals and Objectives
The SIMF/SCD network
Community Support for SCD/SIMF and Sicklers
Get involved today!
What is SIMF doing about SCD?
SIMF Future Goals and Objectives
The SIMF/SCD network
Community Support for SCD/SIMF and Sicklers
Get involved today!
Who is the Sickle in Me Foundation? (BACK TO TOP)
The Sickle in Me Foundation was established in mid-2014 by a parent whose child suffers from Sickle Cell Disease. SIMF is a Hamilton-based non-profit organization.
We are a non-profit organization created solely for the purpose of spreading awareness about and facilitating education about this chronic, lifelong illness. Thus, our long-term and immediate mandate is to foster opportunities both in domestic (Canadian) and international arenas for Education, Programming and Activism. Education in terms of re-educating the public about Sickle Cell Disease – whom it affects, its causes, its overall impact on Sicklers and society as a whole. Programming in terms of providing further assistance to Sickler families with services to alleviate some of the social, psychological and economic stress they will experience, both short- and long-term. Finally, Activism in terms of changing the way SCD is viewed in society and by the medical community. As well, as becoming a champion for Sicklers to have current disease management efforts reassessed. And, getting the Sickle Cell and Thalassemia Bill signed into law, creating a national strategy and office to combat SCD and service Sicklers and those who may be at risk (carriers or future Sicklers themselves).
Our long-term and immediate mandate is to foster opportunities both in domestic (Canadian) and international arenas for Education, Programming and Activism.
The Sickle in Me Foundation was established in mid-2014 by a parent whose child suffers from Sickle Cell Disease. SIMF is a Hamilton-based non-profit organization.
We are a non-profit organization created solely for the purpose of spreading awareness about and facilitating education about this chronic, lifelong illness. Thus, our long-term and immediate mandate is to foster opportunities both in domestic (Canadian) and international arenas for Education, Programming and Activism. Education in terms of re-educating the public about Sickle Cell Disease – whom it affects, its causes, its overall impact on Sicklers and society as a whole. Programming in terms of providing further assistance to Sickler families with services to alleviate some of the social, psychological and economic stress they will experience, both short- and long-term. Finally, Activism in terms of changing the way SCD is viewed in society and by the medical community. As well, as becoming a champion for Sicklers to have current disease management efforts reassessed. And, getting the Sickle Cell and Thalassemia Bill signed into law, creating a national strategy and office to combat SCD and service Sicklers and those who may be at risk (carriers or future Sicklers themselves).
Our long-term and immediate mandate is to foster opportunities both in domestic (Canadian) and international arenas for Education, Programming and Activism.
What is SIMF doing about SCD? (BACK TO TOP)
In mid-2015, SIMF will host its First Annual Sickle Champions of Today 5k Walkathon. As well, developing ongoing social media campaigns such as “Sickle Cell does not Discriminate” and Sickler Champions, and other initiatives to show the true multicultural, ethnically diverse face of SCD.
In mid-2015, SIMF will host its First Annual Sickle Champions of Today 5k Walkathon. As well, developing ongoing social media campaigns such as “Sickle Cell does not Discriminate” and Sickler Champions, and other initiatives to show the true multicultural, ethnically diverse face of SCD.
SIMF future goals and objectives : What do we want do accomplish? (BACK TO TOP)
- Create a provincial and national grassroots and social media support system of Sicklers, sickle cell disease/anemia community and health care/provider stakeholders. The objective is, yes, to provide physical, mental and psychological support to Sicklers, their families and friends (and general support groups). Our online social media board will allow Sicklers, their families, sickle cell stakeholders, and Sickler supporters and information gatherers to interact with one another from all across the country, and around the world.
- Establish an online resource centre for all things sickle cell disease/anemia- related. After all, how do we expect to change the way Sicklers, sickle cell disease, and sickle cell disease treatment and disease management is viewed and approached. The change starts with educating and re-educating ourselves, our families, our support systems, our communities and health professionals, and the medical industry.
- Establishing a headquarters in Canada, equipped and spacious enough to house a recreation/community centre. Eventually, we hope to establish centres across Canada. These centres will become a space where Sicklers, sickle cell stakeholders, sickle cell supporters. As well as those who wish to learn about/assist the sickle cell disease/anemia community, can come together and interact with one another.
What does the SIMF/SCD network look like? (BACK TO TOP)
To date, SIMF has collaborated with the Canadian Blood Services and One Match to engage donors for stem cell transplant as this is the only known cure for Sickle Cell Disease.
To date, SIMF has collaborated with the Canadian Blood Services and One Match to engage donors for stem cell transplant as this is the only known cure for Sickle Cell Disease.
Present community support for Sicklers and SIMF (BACK TO TOP)
In 2015, SIMF secured support from community businesses in Hamilton and the Greater Hamilton/Toronto and Greater Toronto areas, respectively.
In 2015, SIMF secured support from community businesses in Hamilton and the Greater Hamilton/Toronto and Greater Toronto areas, respectively.
Get involved with SIMF today! (BACK TO TOP)
There is no pressure whatsoever. If supporting the Sickle In Me Foundation sounds like something you would be interested in, then click here and let’s talk. Or contact us via the links above.
There is no pressure whatsoever. If supporting the Sickle In Me Foundation sounds like something you would be interested in, then click here and let’s talk. Or contact us via the links above.
