The Sickle IN Me
  • The
    • About Us >
      • To Donate
    • Our Mission >
      • BREAK THE STIGMA >
        • Believe IN We
    • Contact Us
  • Sickle
    • Sickle Activism
    • Sickle Education
    • Sickle Programming
  • In ME
    • Volunteer
  • Awareness
    • Awareness Ribbons
    • Events

Sickle News

this week in sickle cell news August 24th to the 30th 

8/30/2015

0 Comments

 
By Sean Marshall
Big news out of India this week from the Nagpur state government. It was reported in The Times of India that “this weekend, state government officials and experts attended a meeting in which some landmark decisions for the welfare of patients of sickle cell disease (SCD) were made.”

It was also stated the decisions at the meeting included “ making provision for conducting free antenatal diagnosis tests with the help of Mumbai-based National Institute of Immunohaematology, proposal to set up a fund for patients needing hip joint replacement as they are not included in Rajiv Gandhi Jeevandayi Arogya Yojana.” The meeting also dealt with “testing of all kids in ashramshalas in state by Pune-based Tribal Research Institute.”

It was said that many supporters both in the government as well as N.G.O.'s and even the public felt this meeting was overdue. One important aspect was a quote from the head of pediatric department of Indira Gandhi Government Medical College. Dipty Jain was quoted to have said “the most important thing being with government officials but doctors, researchers and activists all attending it, all aspects and problems were taken into consideration before making the decisions."

There were other decisions being made that involved running sickle cell day cares establishing centers in areas that are underdeveloped and spreading sickle cell awareness. But what really does stand out is that almost everyone from many different walks of life were there to make this decision together.   

This is not only a big move on India's part but it also sets a precedent for the rest of the world. 
The original article can be found here: http://timesofindia.indiatimes.com/city/nagpur/States-slew-of-sops-for-sickle-cell-patients/articleshow/48659916.cms

If there are any comments questions or concerns email us at thesickelinme@gmail.com  

0 Comments



Leave a Reply.

    About 

    This section is solely to let our Sickle Soldiers tell their story trials & tribulations alongside things they feel are wrong in the Sickle Cell Community

    Archives

    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    April 2014

    Categories

    All
    Anemia
    Cell
    Death
    District
    Life
    Music
    Rap
    Sad
    Setter
    Sickle
    Soldier
    Swag
    Trend
    Young

    RSS Feed

Powered by Create your own unique website with customizable templates.
  • The
    • About Us >
      • To Donate
    • Our Mission >
      • BREAK THE STIGMA >
        • Believe IN We
    • Contact Us
  • Sickle
    • Sickle Activism
    • Sickle Education
    • Sickle Programming
  • In ME
    • Volunteer
  • Awareness
    • Awareness Ribbons
    • Events