By Sean Marshall
A Press releases surfaced this week that explained that The Sickle Cell Disease Association of America, Inc or the SCDAA for short has “been designed to serve the National o serve as the National Backbone Organization for the Health Resources & Services Administration.” The Health Resources and Services Administration (HRSA) has implemented a newborn screening process. They have plans to work with community based organizations as well as the five highest religious based off of numbers and implement a “strengthened approach to care, collective impact and strategic activities within the sickle cell community.”
The general plan seems to be spreading awareness to the specific areas effected by sickle cell disease rather then across the nation in an attempt to help those who need it most.
It was outlined that the SCDAA has “crafted a multifaceted national program to identify patients with sickle cell disease and link them to high quality care within their communities.” This is supposedly going to be done through community based outreach programs. It was explained that “Through community-based efforts the program will institute a systematic community engagement recruitment process in order to find patients needing access to care and assist them with continuous care coordination and education
Again it appears that the main goal is to find those with sickle cell early on and get them the medical attention they need as well as the proper education to have an active and full life.
If you want to see the original press release it can be found here: However take in mind this is a press release which is essentially an add. So take all this information with a grain of salt no matter how fortunate it may be.
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This section is solely to let our Sickle Soldiers tell their story trials & tribulations alongside things they feel are wrong in the Sickle Cell Community