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Sickle News

This week in sickle cell news June 22nd to the 28th 

6/29/2015

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By Sean Marshall
It was reported by the Daily Post this week that Nigerians have the largest cases of sickle cell anemia. A direct quote from the article best sums up the shocking discovery “Nigeria has the largest population of people with Sickle Cell Disease in the world, with over 150,000 babies born with the serious condition every year, researches have shown.” It was also explained that estimates put only about five percent of children with sickle cell disease live past the age of 10 in Nigeria. This statistic was compared to the 96 percent that live in the United Kingdom.

The article mainly focused on spreading the awareness of the high numbers of sickle cell anemia cases in Nigeria beyond that there was nothing new to be found.

The original article can be found here: http://dailypost.ng/2015/06/21/sickle-cell-disease-nigeria-has-largest-cases-in-the-world-research/
The Times of India reported that Minister for Social Justice Rajkumar Badole of Nagpur assured activists that “ All the problems of the poor people in the state suffering from sickle cell disease (SCD) will be solved within the next three months.”The first step in the master plan is awareness in a quote from SCSI president Sampat Rameteke he said “awareness about SCD needs to be made among the 150-odd MLAs whose constituencies are home to most patients of the disease," he also asked “every MLA to provide them a list of problems that institutions like primary health centers, rural hospitals, sub district hospitals are facing.”

They hope that if they spread awareness and then find out the difficulties hospitals are facing when dealing with sickle cell disease they may be able to root out any issues in the future. The last step they reveled is looking into families with the genetic blood disorder in order to educated them before they have children. The article mentioned that more on Rajkumar Badole promise will come in the future so we will have to be patient and optometrist.
If you want to read more the article can be found here: http://timesofindia.indiatimes.com/city/nagpur/Problems-of-sickle-cell-disease-patients-will-be-solved-in-next-three-months-Rajkumar-Badole/articleshow/47802742.cms
If there are any comments questions or concerns email us at thesickleinme@gmail.com

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