By Sean Marshall
Not many new news updates this week. The top story would involve The Sickle Cell Society's Annual general Meeting date was announced this week. According to blacknet.uk “ The Sickle Cell Society’s Annual General Meeting will be held on Saturday 18th July at Grand Connaught Rooms, Holborn, London WC2B 5DA.”
The announcement was meant to enable those to help “direct the Sickle Cell Society”, those who can attend are also invited to an educational seminar stressing the latest developments in “Utero Gene Therapy in a talk led by Dr Stavros Loukogeorgakis.” The big hook of this years assembly is “Is this pioneering new treatment a “cure” for sickle cell?” This is of course related to the advancement of Utero gene therapy over the last few years.
Utero gene Therapy is the practice of changing the genetics of a child still in the uterus. This is usually done to stop fatal disease and disorders that would cause a difficult and short life. This years guest speaker is specifically address if and possibly when the act of Utero gene therapy could stop sickle cell from happening.
Fortunately this years assembly is also free to any that arrive. However the article adverting the event warned that “but place are limited so book your space today.”
More information can be found here: http://sicklecellsociety.org/upcoming-event-sickle-cell-society-agm-london-18th-july/
The original announcement can be found here: http://www.blacknet.co.uk/upcoming-event-sickle-cell-society-agm-london-18th-july-2/
Other news involved an Orangeburg's Jeddah Temple presented a $5,185 check to the Orangeburg Area Sickle Cell Anemia Foundation Inc. Orangberg is a city found in South Carolina and the Jeddah Temple 160 was not short on cash or heart. It was explained in the article that “the funds will go toward assisting sickle cell patients pay their utilities, medical bills and fuel costs.” The money was raised because the local sickle cell funding in the area has been cut b 33% and local temple goers wanted to give back to the community.
The article also went out of its way to explain what a Jeddah is “currently, the Orangeburg Jeddah Temple has about 100 members and is affiliated with the Ancient Egyptian Arabic Order Nobles Mystic Shrine North and South America Inc.
The non summarized original article can be found here: http://thetandd.com/news/jeddah-temple-makes-donation-to-orangeburg-area-sickle-cell-anemia/article_886b44a8-29b6-51a9-adfe-37d76bbbbeea.html
Any comments questions or concerns email us at firstname.lastname@example.org
This section is solely to let our Sickle Soldiers tell their story trials & tribulations alongside things they feel are wrong in the Sickle Cell Community