World Sickle Cell Day and Sickle Cell Disease Awareness Month are NOT the same.
World Sickle Cell Day is celebrated in June, is actually on June 19th of each month, is recognized globally and was created by the United Nations by resolution. People will celebrate it on different days and in different ways, because the next time June 19th will be on a Saturday is in 2021!
In the United States, Sickle Cell Disease Awareness Month is in September, is not recognized in every state, and is not recognized globally! It is created by State representatives voting to recognize it in their individual state.
Sickle Cell awareness not recognized by all countries, globally.
The World Health Organization (WHO) has started work to promote a world wide agenda to address hemoglobin dysfunctions.
WHO has made a commitment to:
· Recognize that sickle cell disease is a major health issue.
· Increase awareness of the world community regarding sickle cell disease.
· Eliminate harmful and wrong prejudices associated with sickle cell disease.
· Urges member countries where sickle cell disease is a public health problem to establish health programs at the national level and operate specialized centers for sickle cell disease and facilitate access to treatment.
· Promote satisfactory access to medical services to people affected with sickle cell disease.
· Provide technical support to all countries to prevent and manage sickle cell disease.
· Promote and help research to improve the lives of people affected with sickle cell disease.
The World Sickle Cell day is celebrated across the globe with special emphasis in African Nations and Asia. The celebrations include a press, media campaigns, music shows, cultural activities, and talk shows.
The main emphasis is hence on educating medical professionals, care givers, and associated personnel about prevention, research, and resources to minimize the complications due to sickle cell disease. Hence June 19th is devoted mainly to spread awareness, through talks, seminars, pamphlets, literature and consultations.
ALWAYS remember that this is NOT a "ME" thing, it is a "WE: thing!!!
This section is solely to let our Sickle Soldiers tell their story trials & tribulations alongside things they feel are wrong in the Sickle Cell Community